Showing posts with label atypical leiomyoma. Show all posts
Showing posts with label atypical leiomyoma. Show all posts

Friday, December 27, 2019

And then what happened?

I mentioned that I’d had a thing removed from my arm in October, and that my dermatologist thought it was a dermatofibroma, but it wasn’t. Instead it was an atypical leiomyoma, and because of the location, it’s quite rare. The pathology reported some alarming features and no clear margins, so I had to have it re-excised in late November.

Boy, I’ll tell you what, that local anesthesia injection really hurt with the re-excision. My dermatologist said that’s because the body very quickly forms thick scar tissue in the healing process, which later gets remodeled into thinner, less bulky tissue. Because I had the re-excision just a month after the first excision, the injection just sort of ripped all that thicker tissue apart.

He showed me how much tissue he took for that one—it was a lot more than I thought he’d take, and I could see the fat globules just like you see in anatomy books. It was oddly compelling. The incision itself is less than beautiful, although I still think it will improve. At least I hope so.

The path report came back with minimal information—basically all it said was yup, you got clean margins.

But at my annual physical with my PCP in November, I mentioned all this and shared the path report. Because these atypical leiomyomas are also associated with kidney cancer, he ordered an ultrasound. And guess what? I have a couple of small tumors on my right kidney. So a week ago, I had a CT scan with and without contrast dye.

Now here’s the thing. I’m allergic to contrast dye, and the last time I had it, I got hives. So I had to take prednisone and Benadryl ahead of time only . . . I got hives again. Worse than the first time. Any thought I had that maybe I wasn’t really allergic? Gone. I’ll finish up the new course of prednisone today, and thankfully the hives started going away pretty fast once I started on the full course of treatment.

And to put a pretty bow on the story—yes, I have some small benign angiomyolipomas on my right kidney. I’m sure we’ll follow those to make sure they don’t grow. The report also said this: incidental noted is prominence of the IVC. I wondered if that’s because I’m a runner? Who knows.

Wednesday, November 6, 2019

I'm a snowflake

Four years ago, I got the shingles vaccine—not the new and improved one that requires two doses but the one that was available in 2015. In less than a day, the injection site on my left arm had a big angry welt and it hurt. While the redness and pain diminished, the welt turned into a visible lump that bothered me. It didn’t hurt/hurt, but it was annoying and I hated how it felt and looked.

In September when I saw my dermatologist for my biannual follow up for melanoma, he commented on it and offered to remove it. I said heck yes, so on October 24, he excised it and sent it off for biopsy. He was very confident it was a dermatofibroma, but as he said, it’s always better to get that diagnosis confirmed by pathology.

Fortunately he did send it for analysis because it’s not a dermatofibroma but an atypical leiomyoma and quite rare. In fact, Dr. Google had very few resources for me. I found some good information here (but you have to create a free account to read), and also here. But there’s not a lot out there.

The pathology report also said more tissue needs to come out because what was taken doesn’t have clean margins. So joy of joys, I get to have another chunk removed from my left arm.